Wednesday, 6 March 2013

counting my blessings

FIBROMYALGIA
FIBROMYALGIA (Photo credit: *SHESHELL*)
I have been a bit erratic posting  in the last few days. This is because I am in the middle of a Fibromyalgia Syndrome flare-up.
FM as it is often abbreviated is a little-known condition that affects millions of people. It's part chronic fatigue, part chronic pain with a variety of other weird side effects including  fibre-fog, an inability to process thoughts, say the right words or think clearly in my case. And insomnia or an inability to get REM deep sleep. Which is great when you have 7 children.
Ive been unable to leave the house on some days, my bed on others. I won't bore you with the minutae ( well, not right now ;-)) but I wanted to post this.
On Monday I was unable to leave the house. I had trouble heaving myself into the shower. Driving was out of the question. I was feeling very sorry for myself and to be honest a little bit angry that the God I worship and love had bestowed this less than welcome gift on me.  ( Of course I know He hasn't - it's my own body mixing random messages and chemicals and coming up with it but hey- I hadn't slept and was in pain!)
Then I sat and read another person's blog. I cried, and I felt guilty for being pissed off about my stupid syndrome.
This lady is the daughter of someone I know from a church group. She is 20 years old. She is bright and beautiful ( burst into song if you feel like it - I think she'd laugh)
She has Dystonia.
I won't attempt to describe this dreadful disease which leaves her bent and twisted, in agony and sometimes unconscious.
I will just tell you that she handles her most awful situation with grace, dignity and humour. I am in awe.
Go read her blog. And count your blessings. I did.





http://dystoniaandme.wordpress.com

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