Sunday, 2 February 2014

#tiredexhausted - the linky to shout about invisible conditions.

Welcome to the second month of the #tiredexhausted linky for people to post if they are affected directly or indirectly by any invisible condition.
Blogging in my PJ's during a mild flare-up
My story (abbreviated!)
I was diagnosed 7 years ago with Fibromyalgia and since then, along with the pain, fatigue and brain fog which comes with this condition I have suffered from stares, whispers behind my back and plain rudeness to my face from people who obviously think because I look fine, I am fine.

I am determined that this is the year that I do my bit, what little I can, from my corner of the internet to educate as many people as I can about Fibromyalgia, Chronic Fatigue Syndrome and ME and any other similar conditions I hear about. I can shout, but if I can get people to shout with me more people will hear.

I know quite a bit about my condition and how it affects me. But I also know that for each person with a so-called invisible illness there is a completely different set of symptoms.

Can I post about....*your condition*?
Almost certainly YES! You don't need to ask if your condition is included - PND, SPD, mental illness, heart conditions - all these and any more are welcome. It doesn't need to be you with the condition - talk about your friends and family. Let them know you believe them - so many of us feel guilty and that people think it's all in our heads.
I don't know what to write...
Your blog post does not need to be just about the condition that affects you - If it's only mentioned in passing in an anecdote about your week, in a review post about something that helps, in a picture, a poem  that sums up your feelings, that's fine.

Educational or entertaining, happy or sad, humorous or horrendous, posts and pictures and poems old and new - share, share, share and lets shout out and spread the word - we may be Tired & Exhausted but we won't take it lying down!

I'm in! Now what?
Please feel free to grab my badge and display either on your blog homepage and/or in your linked up blog post. I will RT anyone who does!

And don't forget, Linkys work best when people read other posts and comment - even if it's just the one above and below your post, please show those bloggers your support.

Thanks - Afra x

Mad Mum of 7 - Living It Large

5 comments:

  1. This is such a great idea for a linky, because of these illnesses being invisible it's so hard for others to understand. Hopefully this will shed some light on the reality of certain illnesses

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  2. Is there a way to set up the linky badge so that it directs to the current linky page?

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    Replies
    1. Any condition that has fatigue as a part of it, can be very lonely and isolating. If you have a friend, with any from of fatigue, especially if they can't get out, please try your best to contact them every day. Please don't think that someone else they know will do it. Try to pop in if you can as often as you can- ask them first. Take a cake and make a cupper together. You may even find it difficult to see your friend suffering. But please support them and be there for them. Afra is very lucky to have the friends she has, and if you are her friend -keep up the very good work you do to support her. Nicki

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  3. Thanks for comments - the linky posts disappeared because of a technical problem with the site that runs the linky - we'll be back on the first Sunday in March

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I'd love feedback- but keep it clean and kind.